Wednesday, January 23, 2013

Heaviness and Light

We've just come out of such a wonderful week with my parents visiting from Washington and I don't think I can adequately describe just how much fun we had. My parents sure know how to relax as well as have fun! Casey loved having their attention and he suckered them into reading about a billion books. We absolutely love that our boy is a book fanatic! He's learning new things by the day and continues to amaze us and bring us joy.

While my parents were here, we recieved the sad news that Grandpa Dupar had passed away (Aaron's mom's dad.) We knew his health had been declining over the past few months, but the timing and news of his death still came as a bit of a surprise. It was nice to have my parents here to bring comfort. It's in those moments that you're never prepared for the emotions and it's one of the toughest times to live far away from family.

Grandpa Dupar was an amazing funny and gentle man. He could tell so many stories and keep us all laughing. Christmas 2011 was was a time we'll never forget. All of us were together! All of Aaron's family and even my family flew down to Palm Desert, California for a sunny Christmas. Casey was only 6 months old and looking back, that time together will bless our lives forever.

Grandpa's memorial/celebration of life will be in early March. While we want to be there, the timing is a challenge for us. So we will be there in spirit.

Casey and I will actually be flying out to Seattle in mid-February for two weeks. We will use this time to connect with family. And after much consideration, prayer and thought, I will also be seeing a specialist in Seattle regarding my unexplained symptoms. I'm not sure how many of you read my last post (and/or the comments) but a dear friend of mine from Virginia had suggested possible Lyme Disease. It struck me as interesting because that was the first thing my ND here on the island had brought up back in September. Obviously having grown up in Washington, I have heard of Lyme Disease but I didn't know much about it. So back in September, I was given the CDC approved antibody test which came back negative. I guess I just blew it off as another thing to check off the list. But then both my ND and MD here started to explain to me that the test is inaccurate 60-70% of the time for something called Chronic Lyme Disease (advanced stages.) After revisiting the possibility, I have been advised to seek a thorough examination by a Lyme literate MD in Seattle (there are no LLMD's on the islands). I'm taking a series of very specific tests but will also be evaluated clinically to determine what is going on. All of that to say, I have clearly been chasing down a lot of rabbit holes so I have no idea what will come of this, but there is no doubt that my symptoms are almost creepily (if that's a word!) similar to Chronic Lyme Disease. There are a lot of misunderstandings about this disease which makes the diagnosis all the more frustrating and difficult, but there's no doubt that it exists and that it is thought to affect thousands - if not millions - of people around the world and many of whom are misdiagnosed with things like Chronic Fatigue Syndrome and Fibromayalgia. I'm grateful and confident that either way, I believe this extremely competent specialist will be able to help me determine what it is I've ben suffering from. I can never lose hope.

If anyone is interested in reading about Lyme Disease and other ticke borne diseases, you can visit this link for very useful information: http://www.thehealingartspartnership.net/lyme-disease_misconceptions.htm

As I said, this could prove to be just yet another thing I check off the list, but it's important to either diagnose it or rule it out. So i'm going with my gut (the Holy Spirit) and am going down this path. Yes, i'm nervous. Yes, I have many questions. Daily I remind myself that God knows every single detail about me (and all of us! Whether we like it or not.) EVERY LITTLE THING. While that means He knows every good or nasty thought we have, it's also comforting to know that God knows what is ailing me and I believe He's guiding each step i'm taking. With the support of my loving family, this is happening.

To my praying friends, would you please join us and lift up this process? We are giving it over to God. We are tired of searching, wondering, confusion, helplessness and more. I say "we" because chronic illness affects everyone closely connected to the person suffering. But in truth, I can proclaim God's faithfulness through it all. I have been stretched, am being transformed and in my heart, i'm better because of it. Even in the heaviness of life...the loss of a loved one, the pain of illness....there is still joy, hope and light.

I will not be sharing about this process publically via facebook and will only be sharing these personal details here. But outside of seeing the specialist and spending precious time with family, I certainly would love to catch up with friends.

3 comments:

Ruthy&Andy said...

Praying! And interestingly enough I have also been told to check into the possibility of the same thing sometime in the future--the first midwife suggested it may be responsible for my weaker immune system. I have to not be pregnant or breastfeeding though because if it's positive it several months of heavy duty antibiotics. I hope they figure it out for you!!

Darren and Caitlin said...

I'd love to see you if you have time while you're here! I'll continue to pray for you. And I must say how much I admire your honesty and strength (and GRACE) and you travel through this process!

-Mike & Chel- said...

Aw dear friend. My heart goes out to you. I lost my Grandaddy this summer and I still have random times where I burst into tears because I miss him. My thoughts and prayers go out to your whole family. I can only imagine that it must be difficult to not go to the service. I encourage you to do a little at home service with Casey and hubby. My siblings and I did one at the beach and it was so meaningful and special for us. Love you dearly friend.